Abstract
Objectives: Quality of life assessment is a valuable tool in cancer care as it allows us to understand how cancer and healthcare interventions influence the lives of the patients. An appropriate QoL assessment instrument would enable healthcare practitioners to identify and manage problems, which have a negative influence on QoL of cancer patients, timeously. The objective of the study was to develop and validate a patient informed QoL assessment instrument for our patient population.
Methods: A quantitative design was used. A Quality of Life questionnaire was developed by using the themes and categories identified during interviews with cancer patients and subjected to psychometric analysis using the Rasch Measurement Model.
Results: After validation of the questionnaire, by means of the Rasch model, it was found that the questionnaire conformed to Rasch model expectations. The developed instrument comprised relevant domains of QoL for South African cancer patients who access public healthcare for treatment, as identified during interviews with patients. It is proposed that the instrument be further validated for other populations in South Africa.
Significance of the Results: An appropriate QoL assessment instrument can be used for the assessment of QoL of cancer patients in order to identify and address problems timeously. The instrument needs to be culturally sensitive and include the domains of QoL which are relevant to the patient population. The QoL assessment instrument developed in this study is appropriate for cancer patients in South Africa who access public health service for treatment.
Keywords: Quality of Life (QoL); Domains of QoL; QoL Assessment; Rasch Measurement Model (RMM)
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