Research Article
Volume 11 Issue 2 - 2022
Waiting for a Transplant: The Perception of Adolescents with Chronic Kidney Disease
Ana Tereza da Silva Mendes1, Zeni Carvalho Lamy2, Marina Uchoa Lopes Pereira3, Ruth Helena de Souza Brito Ferreira de Carvalho4 and Gabriela Cirqueira de Souza Barros2*
1Master, Federal University of Maranhão, São Luís, Maranhão, Brazil
2Federal University of Maranhão, Department of Public Health, São Luís, Maranhão, Brazil Gabriela Cirqueira de Souza Barros – Master’s Student. Federal University of Maranhão, São Luís, Maranhão, Brazil
3Master’s Student. State University of Campinas, Faculty of Medical Sciences, Department of Public Health, Campinas, São Paulo, Brazil
3Federal University of Maranhão, São Luís, Maranhão, Brazil
*Corresponding Author: Gabriela Cirqueira de Souza Barros, Federal University of Maranhão, Department of Public Health, São Luís, Maranhão, Brazil Gabriela Cirqueira de Souza Barros – Master’s Student. Federal University of Maranhão, São Luís, Maranhão, Brazil.
Received: December 17, 2021; Published: January 28, 2022




Abstract

Introduction: The study aimed to understand how adolescents face chronic kidney disease (CKD), its treatment and renal replacement therapy (RRT) over time. Methodology: Qualitative study in the capital of the Brazilian Northeast with 20 adolescents with CKD. Five focus groups were held addressing the process of living with the disease. Content analysis was carried out in the Thematic modality. Results and Discussions: The adolescents brought their meanings of disease, ruptures and changes, desires and projects and the resignification of health and disease. Three categories were found: “A heavy cross”; Getting rid of the disease: “a life without hemodialysis”; "Normal as an ordinary person". Conclusion: Adolescents with chronic kidney disease demonstrated strong determination to adapt, giving new meaning to health and illness and expressing desires and plans. The narrative they created for their lives was not necessarily tragic and many spoke of health among the disease.

Keywords: Adolescent; Renal Insufficiency; Chronic; Attitude to Health; Health-Disease Process; Quality of Life

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Citation: Gabriela Cirqueira de Souza Barros., et al. “Waiting for a Transplant: The Perception of Adolescents with Chronic Kidney Disease”. EC Paediatrics 11.2 (2022): 57-67.

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